Pediatric Rare Disease Case study in Latin America presented at DIA, July 28, 2016, Philadelphia
Farmacon will be at the BIO International Convention held in Boston, MA from June 4 to 7. The conference is organized by the Biotechnology Innovation Organization (BIO), epresenting 1,100 biotech companies academic institutions and other organizations. Sara Tylosky, president of Farmacon, will be there June 5 & 6 to share information about how Farmacon's network of doctor consultants provide solutions for biotech companies that need CRO management, face start-up or enrollment challenges in Phase 2ab or Phase 3 clinical trials and to attend educational seminars to keep up-to-date on the biotech's industry's relevant topics.
Dr. Charles Schmidt has participated at the event: "The Future of Health" (Futuro da Saude), a Tedx Talk that took place in Sao Paulo on May 12, 2018.
“Happy to help TEDx Health in Sao Paulo-Brazil - Real life disease experience presentations and hope for the patients with new ideas and innovation “ (Dr. Charles Schmidt, Medical Research Consultant of Farmacon Brazil)
The 8th Global Orphan Drug Conference and Expo will take place on April 25 - 27, 2018 at Gaylord National Harbor Hotel, Oxon Hill, MD.
Sara Tylosky, CEO of Farmacon will be attending the Global Orphan Drug Conference, a global gathering of 1,000 leaders in orphan drugs from 38 countries, covering all aspects of orphan drug development and rare disease research.
There will be discussions on orphan drugs policy, gene therapy development, global patient advocacy, global market acces, cell and gene therapies, among others.
Dr. Charles Schmidt, medical research consultant of Farmacon- Brazil, pariticipated in the event in São Paulo City.
The event hosted by the chamber of major from Sao Paulo and organized by the NGO Instituto Vidas Raras, brought together doctors, scientists, researchers and experts from all over Brazil to discuss the current outlook, technological advances and, above all, public policies aimed at the diagnosis and treatment of so-called rare diseases.
The vice president of the NGO Vidas Raras Institute, Regina Próspero, also highlights the importance of information as a way to minimize the suffering of patients and their families.
"Because if you make people aware of that evil, you can fight. All the evil that is known can be fought, or can be avoided. "
On the other hand, Charles Smith, Medical Reasearch Consultant of Farmacon in Brazil, was one of the speakers at the event talking about clinical trials in rare diseases.Read More
Focus Groups Conducted to Develop Programs to Enhance Hispanic Patient Involvement in Clinical Research.
Son tres eventos que conformarán la SG2015EERR que se llevará a cabo del 12 al 16 de octubre de 2015 en la ciudad de México (ISSSTE Buenavista):
- 12 de octubre, 4° Encuentro Latinoamericano de Enfermedades Raras (ER2015LA),
- 13-14 de octubre: Congreso médico de capacitación sobre medicamentos huérfanos («Descubrimientos e Innovaciones en Medicamentos Huérfanos»), y
- 15-16 de octubre: X° de la Conferencia Internacional de Enfermedades Raras y Medicamentos Huérfanos (ICORD, por sus siglas en inglés).
FEMEXER y el Proyecto Pide un Deseo México se suman al esfuerzo de Fundación GEISER y ICORD para potenciar el trabajo en las comunidades comprometidas con las enfermedades raras. Para nosotros, al igual que para nuestros aliados en este esfuerzo, la comunidad de las enfermedades raras.