Dr. Charles Schmidt, medical research consultant of Farmacon- Brazil, pariticipated in the event in São Paulo City.
The event hosted by the chamber of major from Sao Paulo and organized by the NGO Instituto Vidas Raras, brought together doctors, scientists, researchers and experts from all over Brazil to discuss the current outlook, technological advances and, above all, public policies aimed at the diagnosis and treatment of so-called rare diseases.
The vice president of the NGO Vidas Raras Institute, Regina Próspero, also highlights the importance of information as a way to minimize the suffering of patients and their families.
"Because if you make people aware of that evil, you can fight. All the evil that is known can be fought, or can be avoided. "
On the other hand, Charles Smith, Medical Reasearch Consultant of Farmacon in Brazil, was one of the speakers at the event talking about clinical trials in rare diseases.